News

Troy Chandler, diagnosed with hydrocephalus in 1994, and his wife, Annette, launched the local event in 2012, offering ...
Alexander Mackenzie, 11, completed the 60 Miles in March challenge for Spina Bifida Hydrocephalus (SBH) Scotland.
The annual barbecue fun day event organised by the Colin Byrne Bursary Fund was a great success with families turning up to ...
The Philippine Children’s Medical Center (PCMC) has achieved a significant medical milestone after successfully performing ...
Though the symptoms of Spina bifida can vary greatly, some common symptoms include, mobility issues such as paralysis or weakness in the legs, bowel and bladder dysfunction, hydrocephalus ...
An Irish radio and TV star was spotted in a shop in Co Kilkenny enjoying a 99 ice cream cone. Bazil Ashmawy, also known as ...
The health minister has been urged to further investigate problems with spinal care at Children’s Health Ireland (CHI) hospitals by families who met her on Monday. Parents whose children rely on ...
Two big-hearted Ballycastle best friends are set to saddle up for a ‘Giant’ charity cycle on Saturday, April 26.
The Scoliosis Advocacy Network and the Spina Bifida and Hydrocephalus Paediatric Advocacy Group are calling for a public inquiry into orthopaedic care failings at Children’s Health Ireland.
Úna Keightley, co-founder of the Spina Bifida Hydrocephalus Paediatric Advocacy Group, said that some families are affected by the spinal surgery controversy alone and then unfortunately some ...
Representatives from the Scoliosis Advocacy Network and the Spina Bifida and Hydrocephalus Paediatric Advocacy Group (SBHPAG) also want a review of CHI’s executive leadership team and an urgent ...
Amanda Coughlan-Santry and Una Keightley co-founded the Spina Bifida and Hydrocephalus Paediatric Advocacy Group. Ms Keightley said The Hiqa report confirms what we’ve been saying for years.