I’m heartbroken, and I’m angry. No child should have to endure what she did. EB stole her from us. Let’s fight for a cure so ...

Influencer Hannah Campbell shared the sad news on TikTok that her 10-month-old daughter, Elliana Rose, who had junctional epidermolysis bullosa, died on Monday, April 7.

Researchers developed and used a novel blood test to diagnose and successfully treat a patient with a rare form of a severe ...

"But, we're soaking up every second with her." Elliana was diagnosed with the rare skin disease at just two weeks old. In a Facebook post, Hannah admitted that she felt helpless when it came to ...

Most cases of nocardiosis start out as lung infections, in which pus-filled cavities, or abscesses containing the bacteria, form in the lungs. This can cause symptoms such as chest pain, a cough ...

Those with piebaldism have areas of lighter-than-normal skin and hair due to the absence of pigment. Read more at ...

It is this gap in people's awareness about those with rare skin conditions that Elaine hopes to bridge. "The first thing people assume is that you're contagious [and think] 'I don't want to ...

Quoin is committed to advancing clinical testing for this product while seeking extensive patent protection for other rare skin disease treatments. The company emphasizes its dedication to ...

“While we are fully focused on completing clinical testing for QRX003 in NS, we are also taking multiple steps to ensure that we have the broadest and most extensive patent protection around the ...

Upon close of merger and $78.9mm concurrent private placement from a syndicate of leading healthcare-dedicated investors, ...

Getting a tattoo means piercing your skin with needles and injecting ink into the second layer of the skin, called the dermis ...