She felt that he had a connective tissue disorder called Ehlers-Danlos syndrome type IV (now reclassified ... to bring education and awareness to others. Our hope is that we can prevent another ...

EDS stands for Ehlers-Danlos Syndrome, which affects a person's connective ... after getting diagnosed with a type of EDS to draw awareness to it and normalize it. For instance, actress and ...

Joleen Plekkenpol of Chanhassen woke up one morning with a “flat” foot; something was wrong with the ligaments. And gradually, this loosening of her joints and ligaments moved ...

Migraine is a complex and life-altering disorder on its own, but many people with the disease also live with Ehlers-Danlos ...

O'Quinn Foundation, The Pamela and David Ott Center of Excellence in Heritable Disorders of Connective Tissue and Ehlers-Danlos Syndrome was established at Baylor College of Medicine to pursue cutting ...

Lexi, 25, faces the same condition and also began her advocacy work at a young age. While in Ottawa last year for the ...

Emma Daniels, from Norwich, was diagnosed with Ehlers-Danlos Syndrome (EDS), which affects connective tissue, after she was misdiagnosed with the autoimmune disease lupus in 2021. In 2023 ...

The caption? “Living with Ehlers-Danlos Syndrome.” I watched it again, stunned. Could this be a name for what I’ve been grappling with my whole life? For years, I’d been brushed off by doctors who ...

Diagnosed with a rare condition called Ehlers-Danlos syndrome, which affects her joints ... “My hope for this journey is to spread awareness, to speak, but then also to listen and to celebrate ...

In adults the joint pain and fatigue associated with hypermobility-type EDS can be misdiagnosed as chronic fatigue syndrome, hypochondriasis, or depression. [25] Vascular-type EDS may also be ...